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Archive for August, 2010

Monday, Day -4

Tuesday, August 31st, 2010

Well we finally saw a little hint of the chemo taking an effect on Jackers today.  He got sick in the middle of him and I playing the Wii and right when he was done, he said, “I feel so much better…can I be Luigi?”  He was literally trying to play Mario Brothers while he was in the process of throwing up.  This kid cracks me up. 

The Dr decided to add another anti-nausea med so hopefully he won’t be getting sick again soon.  He was still in great spirits and was full of energy today.  He is still eating well, in fact he wanted a yogurt and a grilled cheese right after he got sick.  Probably not the best 2 things to eat right away, but that’s what he wanted and all we fine.  It is amazing how our healthy diet has just been thrown totally out the window now that we are at the hospital.  Oh well…

Tonight they hung the last 2 bags of chemo and they will run over the next 24 hours and then he is done.  Hard to believe that he is done with chemo!  We are so happy.  I think Zac and I will have a little “no more chemo” party with Jack on Wednesday since it will be a rest day for him.  He will take a couple of rest days and then be infused on Friday with his stem cells.  We are anxiously awaiting that afternoon…

I am going to post some pics tonight to the website so don’t forget to look at them!

Day -5

Monday, August 30th, 2010

One more day down and the end of one of the types of chemo that he has to do!  All is going really well now…Jack is still eating great, no getting sick, no upset tummy at all so we are happy.  Today was pretty eventful though!  He is so full of energy and he is getting pretty bored, pretty fast.  We were all over this room today and he never ran out of energy.  We played 3 new board games, basketball, put together 6 puzzles, read books, colored more pictures, watched birds out the window, played games on the computer, dowloaded music to dance to…anything you can think of, we did today and he is still up and going strong.  The Dr thinks he is doing great and obviously the chemo will soon start taking a toll on him, but the longer he is like this…the better!

More updates tomorrow!!

Day -6

Sunday, August 29th, 2010

So far, so good!!  Jack has been full of energy andeating well all day long.  He had the second day of the chemo that he had a reaction to yesterday, but no problems today!  He is about 5 hours in to his 2nd 24 hour shift of the other 2 chemos and all is good.  He hasn’t gotten sick yet and that’s always a good thing.  He usually takes 2 different meds for his nausea every 3 hours, but this time he is only on 1 every 6 hours.  We got him an acupressure bracelet for nausea and maybe that is working!  Whatever it is…we are happy that all is good.  Hopefully tomorrow will be the same….

Jack had a few visitors today…Tigger, Cinderella, Mickey, and Minnie Mouse!  While they can’t come in to our room, they were able to stand outside his window and wave at him.  He was excited and said that he couldn’t believe that they came all the way from Disneyland to see him…pretty cute.  We took lots of pics and I will start posting them soon.  He has been up and about the room coloring, playing games, reading books, flying a electronic thing around the room, doing puzzles…anything and everything to keep him busy we are doing!

Day -7

Saturday, August 28th, 2010

I didn’t put the date on this because it really doesn’t matter!  It is -7 for us and we will go from there…we were moved up to our new room this morning and it is so small!!  My goodness…really small.  Hopefully we will be able to move to another room that is much larger in a week or so, but until then…it is what it is!

Jack entered his new room today and found tons of new toys and games.  I swear it was like Christmas in there!  We had a great morning of playing and eating like a champ.  He started his 1st chemo that was supposed to run over a 1/2 hour and after 15 minutes he started to get a reaction to it and that has never happened before.  He started coughing and his ear turned bring red.  They turned it off, gave him meds and all was fine.  After a nap, and more premeds, they remixed the chemo and gave him the rest of his dose with no problems.  Thank God.

He then started his next 2 chemos which will run in 24 hour doses over the next 4 days.  So far, so good.  He is playing and eating and all is well.  I left this evening to have a rest night while Zac is staying with Jackers.  I will pick up Jack a few things at the store tomorrow and then be there for the rest of the time.  Sooo…so far, so good.

Our friend, Sue, is running in the Rock ‘n’ Roll marathon in January and is running in honor of Jack.  We were honored when she asked if she could run in honor of him!  She sent me a video today which we have put on this website.  There is also a site for the fundraising that she is doing that we want to pass along to you!

The video: http://www.youtube.com/watch?v=fHLevtyu67c

The website: http://www.firstgiving.com/bsdunne

We say it all the time, but again…thank you so much to all of you who have given us such support during this time.  Your kind words and prayers are something that we look forward to hearing every day.  Thank you so much and keep them coming.  Our little man is going through a hard month and we will take all the prayers we can get!

Thursday, August 26, 2010

Friday, August 27th, 2010

We have checked in for a long stay for Jack’s stem cell transplant as of this afternoon and we are oficially at -8 day of transplant.  We have been telling Jack for the past week that we were going to be staying in our own room at the hospital and once we got there it would be all decorated for him and there would be all sorts of new toys.  We arranged for our friend, Kacey, to come with us and photograph Jack being admitted and then she will be coming back when we leave to photograph the completion of the stem cell stay.  We got a call today to let us know that the air broke on the floor that Jack is to be staying on and that we have to stay down in the NICU tonight.  Are you kidding?!  Poor kid…we had this big build up for this room and now we are sitting in a small room in the NICU without all of our things.  Of course this also meant that I had to cancel having Kacey come to photograph this but she may be able to stop over tomorrow for a bit to get some pics for us.  Once we got here, Jack had to go and get a chest x-ray and since then 4 different Dr’s have been in to go over what we will be doing for the next few weeks.  Jack is on fluids now as well as a low dose of Heparin (a blood thinner) which he will be on the entire time we are here.  We have to up his mouthcare to 4 times a day as well as add a saline rinse to the normal 2 med mouthcare.  He is not going to be thrilled! We have just been playing with some toys and on the computer and he is already getting anxious and wants to get out of the room.  He has to take 2 different medicines tonight by mouth so we are waiting for those before we do the last mouthcare before bed.  We have also been told that they will be waking Jack up every morning at 6 AM and 6 PM for a weight check.  Lovely.  Oh well, that is probably the easiest thing he will have to go through over the next few weeks.  Jack will start his chemo tomorrow (Day -7) and he will be infused with his stem cells on day zero…next Friday. 

We are very anxious to get this started and done and over with.  It is hard to believe that this is Jack’s LAST chemo!!  So crazy.  His little body has gone through so much in the past 5 1/2 months that it blows my mind.  After he is done with the stem cell transplant and recovers, he will start his radiation…we will get into all of those details after we are done with this! 

We are taking this one day at a time and please keep all your prayers coming for Jack.  Thank you so very much.