Jack had another clinic appointment today and all went well. He is holding steady with all of his counts and is doing great. He gets to stop one of the medications that he went home on so he is only down to an antiviral that he will have to take for a year. He is also staying at his weight…not losing, but not gaining. He eats all day long, but he is also running all day long. They said that he has always had a high metabolism and they expect it to stay high for awhile after transplant. We are going to start him on his protein powder again as well as some other supplements that he used to take so hopefully that will help him put on a pound or two!
As of now, the transplant Dr’s have released him and he will start to see his normal oncology Dr, Dr. Eshun, as of next week. We will see him on Tuesday and then we will go to see the radiologist on Wednesday. They are hoping to start the radiation the week after that. We are a little nervous and don’t really know what to expect, but we will just take it one day at a time.
Jack will meet with the transplant Dr’s again around Day +100 (Dec. 12th) to have all of his scans done again. That will be the first time he will have scans since he stopped chemo so we are really looking forward to having that done. That would be a great Christmas gift…NED.
There was a news story on CBS last night that talked about Neuroblastoma and the immunotherapy that Jack will be starting in December. It was great to see that the news is FINALLY talking about NB (and childhood cancer at all actually!) and hopefully it will go on from there. I will attach the link so you can watch it.
Also, we told you how Adrian Wilson had a ad for his foundation and Jack in the Cardinals program this weekend and we wanted to post it for you all to see! Once again, thank you Adrian, Evon, Ann, and the Cardinals!!