Today was a really long day for Jack, but all went well. We all (as in Zac, me, Jack, Braden, and Nikki) headed down to the hospital around 7 this morning because Jack was supposed to have his radiology simulation done. Since he was getting anesthesia, he could not eat or drink this morning. We got there at 8, when he was scheduled to start, but something was going wrong at the hospital and everything was running behind. He didn’t actually start until 10. He really wanted to eat, but we took him outside and went for a walk and it was nice to get fresh air. We met his the people who will be taking care of Jack during his radiation and they were all so very nice. Dr. Maze will be doing his anesthesia and he is just such a caring man. It is nice to know that the person who is responsible for your child while you can’t be in the room is like him. We are very comfortable with him and that’s always good.
Jack was back in simulation for about a hour. They had to get him in the exact position for radiation and made a mask that they would fit him in each time to hold his head in the same spot. Yes, we asked to keep the mask after he was done…we will post a pic of it at some time. It is all just very interesting to actually learn about. Of course we wish we weren’t having to learn about it, but it is still interesting to look at medicine another way. Jack woke up really well and sat straight up and asked for a Popsicle. That’s Jack’s “thing” after being asleep…he wakes up and wants a Popsicle and some juice and then he wants to go home.
It was time to leave and then we realized we had to get Nikki to the airport in 5 minutes…perfect because it is 5 minutes away! Anyway, we dropped her off and then headed over to PCH to see Dr Eshun. When we were leaving the airport, Jack said, “ohhh…that makes me so saaadddd!”…good thing Nikki and Shawn are moving here in 48 hours! Anyway…Jack is no longer under transplant so we were able to see Eshun again and that’s great! Jack’s counts were great. He is holding his own like a champ. His ANC is over 3,000, his platelets almost doubled since Thursday and are in a total normal range, and his Hemoglobin is holding steady. As usual, everyone is so impressed with him. We ran into Evan and Kathy Lumpkin and that’s always great! Evan was on his way to his last day of radiation so thank God for that! He was out over the weekend and bought Jack a Mario action figure so Jack was thrilled as usual. Braden was a big hit today at clinic. All the different nurses were taking him from us to show him off to others. They all just love our little chunk! Sharon had him sit with her while she ate her lunch and we talked with Dr Eshun. Funny how much all the nurses and Dr’s become part of your family…can’t wait until you can all meet them at Jack’s big cancer free party!
Anyway, we talked about immunotherapy and Accutane and were able to get even more information that we have to read over. It is a lot…a lot of info and a lot of new things that Jack will be doing, but we are ready. Jack has done so well and we are able to see that there is an end to this treatment. That’s a good feeling. Clinic took a long time and we didn’t even get out of there until 2, but the boys were great. Zac and I were exhausted. So now Braden is asleep, Jack and Zac are asleep in Jack’s room, and I am up cleaning and cooking cupcakes for Zac and his coworkers for tomorrow. Everything is good…
Please don’t forget…our wonderful friend, Sue, is running in honor of Jack with the PCH Miracles in Motion at the PF Changs Marathon. She will be running for Jack and raising money for PCH! Please give her some support! Hopefully we will be there so Jack can run with her at the end…yes, once again, I will cry!