Oh geez…today has been a really long day for Jack. Zac and Jack got home really late last night after being in the ER and they told him that they didn’t have a room ready for Jack for this morning and that they would just have to call us. Since I am not that good at waiting, I started calling at 4:30 AM to see when we could get Jack in to start his treatment. His swabs all came back negative for flu or any infection so they decided that they would keep him on the 2nd floor that we are always on but he had to be put in an isolation room since he has a runny nose. The nurse called me at 7:15 and they finally had a room ready, so we got ready and came down around 9:00.
After we got here, I was quickly reminded that we had to put in a hand iv for his pain med. I totally blocked that out and forgot it was round 4 and that we were going to have to do that again. Needless to say, it didn’t go over well with Jack, but he put up with it and he had a line placed in his right hand. He was mainly upset because he felt that he couldn’t play his Wii if he had a “poke” in his hand. We finally started the interleukin around noon and then the antibody around 2 PM this afternoon. About a hour in, he started getting his persistent cough that lasted for a couple of hours. He also started complaining of pain in his tummy and we had to keep pushing the button. He finally just gave up and took a nap but you could see the pain still on his face. It was awful. After giving more pain meds, he seemed to be doing a little better.
He woke up around 5 and his cough came back and came back pretty strong along with that random rash that he got in round 2. He coughed over and over again until 8:30 when I had them just turn it all off until they figured out what to do next. Nikki was here because she brought me something to eat for dinner and I could just see it in her eyes how awful this is to watch Jack. He was/is miserable. After talking with all the Dr’s, they decided to leave it all for for a little bit while his cough got better. He just fell asleep again and they have started everything back up again. They are doing the antibody at a lower rate for awhile to see if his cough comes back again.
In all, today was awful. I just pray and hope that tomorrow will be better. Zac will be here and hopefully we can get through day 2.