17 more hours and we will be in much cooler weather! Off to CA we go and we are so looking forward to getting out of town and to seeing Jack and Braden play on the beach! In the sand! In the water! In mud! Everything that they have stayed away from for so long. Braden has never seen the ocean and Jack has been singing all day long, “We are going on vacation, we are going to California!” He is so excited!! My parents have a whole slew of things for us to do and we are thrilled. We are hoping to be able to meet up with Zac’s brother, Jess, and his family at the beach one day so all the kids can play together and I also found out last night that my friend Jaime is going to be there with her family so hopefully we can meet up with them too!
On to Dr appointment news…I recieved a phonecall today from the Audiology department saying that Jack needed to have a bear hearing test done while under sedation ASAP for end of treatment results. I figured that I would really rather Jack not be put under in July when he is going to be put under again in August so I told the lady that I would call Eshun and Sharon and see if we could just wait until August to have it done. Sharon called me and said that August would be fine and we would just schedule it when he was in for his next round of scans instead of having to go back for an additional sedation. She also told me that Jack’s blood counts from Tuesday were more than perfect and that his Thyroid levels are perfect as well. We will be talking with the endocronologist soon to see what he wants to do about his medication. I have a feeling we will be staying right where we are at but would really like it if he thinks we should decrease the amount of meds he is giving him. We are thrilled his labs are spot on and are looking forward to hearing what his urine tests look like next week.
I also told Sharon what an awful experience the blood draw was and she said that from now on, she would do it. She is very straight forward with Jack and she doesn’t mess around at all so I feel very confident that next time will be much better than the other day!
Ok, it’s 10:00 PM and we are finally done packing! Jack was a huge help as we now have 2 extra carry on’s full of snacks and games for our 1 hour flight. Yes, we are packing more for our trip to Orange County than we did for our trip to NYC!