Yesterday was the day that Jack and I went down to the Cardinals stadium to meet Adrian and thank the people of WalMart for raising $1 Million for the Children’s Miracle Network. I woke up in the morning feeling extremely nervous. You would think that it wouldn’t bother me to talk in public anymore about Jack and our families journey and it really doesn’t. This time was different because I was getting the opportunity to thank Adrian Wilson for being such a strong supporter of Jack and that is something I have never been able to do in a public manner. Adrian always helps us with fundraisers and when Jack was first diagnosed, his family and friends did so much for us but never wanted to make a big fuss over it. He said at the shave off in an interview when someone asked him about all the people who came out to see him at the event that the people weren’t there for him, that the people were there for Jack. He said that he was there to show support and do what he could do help and that all the people came to do the exact same thing. He said, “I have nothing to do with this, Jack did this.” He is a very humble person and family comes first and I happen to like that!
Not only was I getting a chance to let 1,000 people know how much we appreciate the Wilson’s, but I was going to be able to let those 1,000 people know how much I appreciate them. How thankful I am that they make it a priority to raise as much money as they can for the hospital. That the funds that they raised make a huge difference and with this year already off to a good start, they will continue to be making positive changes at PCH. Because of people like them, PCH has grown to be the 2nd largest children’s hospital in the country. Because of people like them, PCH will be able to expand and build a bigger and better ER which they are so in need of. So this time was different, I wasn’t sharing Jack’s story, I was giving thanks and I can tell you that is a bit emotional.
My mom is in town so she was able to come with Jack and I to the event and that was exciting because my Mom hasn’t been to anything yet that we have done post treatment. We arrived at the stadium and walked through the back tunnel which was pretty cool! Jack was pretty shy but he did like seeing the big stadium from the tunnel where the guys run through and thought the place was HUGE! We met back in a room while the event got under way and we were able to spend time with Adrian, his wife, Alicia, Evon, and Garrett. I can tell you that these people truly are some of the nicest people you will ever meet. Usually when I see them we are at an event or just in passing and we don’t get to sit down and talk but this time we were able to and it was good. Nothing in particular…just talking. When they got ready to go out to stage and the nerves kicked up again and then I was kindly reminded by Adrian…”There are A LOT of people out there.” Thanks. Appreciate that.
We entered stage as they played “Firework” and of course my eyes welled up. They didn’t know that song was one that we celebrate to when Jack has clear scans, but they thought it would be a good one to play for our entrance. Adrian spoke to everyone and made a big announcement and then introduced Jack and I. Jack walked with me to center stage and stood by me when I spoke…or trembled really! He was still shy and just looked around at everyone holding on to my pants. I didn’t have my “speech” down pat and was shaking through the whole thing and of course I cried, but I did it. I was able to say thank you and that is what I was there to do. It really wasn’t as bad as I am making it sound, it went well and when we were done we walked off and took pictures and then we were pretty much on our way.
It was a good day and I am happy we did it. I don’t think I could ever turn down the opportunity to spread awareness of Neuroblastoma or do something to support PCH. This is the place that saved our sons’ life and for that we will be forever thankful.
Before we left to head down to the stadium, I got a call from the radiology department to set up Jack’s next set of scans…already?!?! Jack will be getting injected with the MIBG solution on the 15th of May with a CT and MIBG scan on the 16th. We will be meeting with Dr Eshun on the morning of the 18th (happy birthday to me!) and hopefully celebrating that night! When these scans come back clear, we won’t have to get another set until November! We will be doing random urine tests in that 6 months just to keep our minds at ease during such a long time of not having scans.
We are heading out to the dentist this morning for both boys! Jack has a normal cleaning but I am wondering what the dentist will say because even after all that work he had done a few months back, I am noticing that his teeth look like they are starting to get cavities again and we are very good about brushing so we will see. Braden will be having his first checkup today and that should be interesting! I am sure we will have to use bribery in some sort of fashion.