Ok, well I am definitely letting the stress of scans get the best of me. I started off my day in a panic because I totally forgot about Jack’s SSKI drops that he was supposed to start last night before his isotope injection tomorrow for his MIBG scan. I called Dr Eshun and Sharon who told me that it would be just fine if we started them today and continued for 4 days. The reason for the drops is to protect his thyroid during the nuclear med scan. I was, and still am, a bit mad at myself for forgetting. I forget things all the time, but when it comes to treatment and my children, I do not forget anything. I was totally sidetracked thinking about the drops but had to run to the store to get a few things. I ran over a lizard. A small lizard that was running so flippen fast to get past me…I ran it over. I then proceeded to get all teary eyed with the Starbucks lady when she asked how Jack was doing. I then came home and sent my Dad to CVS to pick up Jack’s drops only to find out that I gave Sharon the wrong number for CVS. I gave her the number to a location that was 20 minutes away. Ok, no big deal. I will call them and have it transferred. I call…they decide to inform me that they don’t have the drops there and they would have to order them. When I asked why they didn’t call to tell me this they simply said, “Oh, I thought the other guy did.” So I lost it on the 1st CVS employee. I was then called by PCH by a very nice girl that wanted to go over my insurance policy and what we would owe when we came in to the hospital as if we had never been there before. Again, lost it. So now we stand with me having 4 points towards my loss of insanity to the lizard, the Starbucks girl, the CVS employee, and now the PCH employee. Moving on….I call the other CVS to see if they have the drops. They don’t. Will they help me find a pharmacy that does….nope. They say they don’t have a computer system that can do that. I am now up 5-0. Another employee taken over by my scanxiety. I then call another CVS to ask if they have them…they do! Perfect…but they can’t fill it for 2 hours. Ughh. Ok, at least we have it coming today….until another CVS employee calls about 45 minutes later. Poor guy. He called to tell me that he wanted a different dropper because he wasn’t sure if we had used this before. I flipped. He said we could get it tomorrow and I told him that we coudn’t wait until tomorrow. He said he understood and I came back back with, “Oh really. You understand?! You would not understand unless your child was having his 1 year post treatment scans to make sure his cancer was still gone and this was something that you absolutely had to start at this moment, so no, you don’t understand.” He calmly told me how he understood how he didn’t understand. Wow, I am a real freak right about now. I soon apologized and he made everything work out and Jack now has ingested his drops. Crisis over Still I am up 6 points for me being insane and 0 for those who have crossed my path.
I apologize now for what I might say this week! Please understand that I am a total wreck…border line needing to check myself in to the loony bin come scan week. I expect everyone to understand the anxiety and stress that comes along with scans, but I know in my normal brain that you cannot understand. I need to realize that the world doesn’t revolve around us all the time! So, ahead of time, sorry!
Anyway, we had a great weekend here! Jack had a wonderful birthday and we thank all of you who came and celebrated or sent notes our way! Jack had so much fun as did his friends and ours! He wanted a water slide again so we did that along with other activities. Some of the kids, parents, and friends stayed until bedtime and as always, we find that to be a good sign. Mother’s day was great because I was able to spend it it with my family and that is all that I wanted. I am going to attach some pictures so you can see what we did! Thank you again to everyone!!!
On a medical note…we go in tomorrow to get Jack’s injection for his MIBG scan on Wednesday. This will be a very short trip to the hospital tomorrow (maybe actually be there for all of 1 hour) and then we will head back home to stuff him full of food since he can’t eat on Wednesday. We will check in Wednesday for his CT scan of his chest, neck, and abdomen and then we will see our wonderful Dr Maze and he will be put under for his MIBG scan which will last about 1 1/2 hours. Hopefully we will hear from Dr Eshun soon after to tell us that there is nothing on his scans and we can exhale as he knows we hold our breath until that moment. Please send your prayers our way that Jack remains cancer free. Tell your family and friends about Jack and ask for their positive thoughts and prayers as well. We will take all that we can!
Also pray for those who come happen to cross my path this week…I feel awful for them!
Jack walking around the corner to see his birthday gift and Abbey being a bit shocked apparently! (don’t mind the garage in the back! We were helping a friend store some things for a bit!!)
Party time! Cole on the water slide:
Once you start filling water balloons…you don’t get to stop!!
Jill, Hudson, Jack, and I…long time friends and so thankful they could come!
Nikki getting in on the action…
And Braden again…eating!
Love my Luigi hat and slippers! Thank you Aunt Nik and Shawny!
Giving his buddy Kyle a hug after getting his gift…so cute!
End of the day…notice it is now dark and everyone is still going strong!
My Dad and Mom…
Mom and Grandma…
Not sure how this one got in at the end but here’s Braden again!
Tags: anxiety, cancer survivor, childhood cancer, Dr Eshun, Family Blog, Jack Morton, Jack Morton Foundation, journey, love, Neuroblastoma, Neuroblastoma blog, Pediatric cancer, prayers, scan anxiety, water slide