Well it’s after 9:00 PM so obviously we won’t be hearing from Dr Eshun tonight….ughh.

Jack did really well today though so that’s a plus!  We arrived at PCH on time and all went really smooth.  We were really happy to see our favorite nucular med nurse, Angela, there and then to know that she would be taking care of Jack while he was under was an extra bonus!  We got to see the Amazing Mary and the rest of the nucular med team and that’s something we actually really enjoy.  The people that are down in this department are really top notch.  We really love them all and consider them part of our family so it is always nice to see them.  Dr Maze arrived and after chatting with him for a bit we got the show on the road.  Jack did well with the mask and went right to sleep.  Almost exactly 1 1/2 hours later, Dr Maze came out and said, “Well do you plan on coming back and seeing him or just sitting in this waiting room all day.”  Typical Dr Maze…love him.  He said Jack did well despite his cold and that was proven when he woke up within 5 minutes of my Dad and I being back there.  Usually he snoozes for a bit, but not this time!  He was up very fast, had his purple popsicle, apple juice, and grabbed his gold fish for the road and we were off.  By the time we got home, he was running around like a crazy man and ate a wonderful dinner so it seems like he is getting back to his old self already.

We are sitting and waiting now for Dr Eshun to call to give us final results but we feel pretty good about it this time.  I am nervous as all get out, but I feel good.

Tomorrow my Dad and I are taking Jack to see a new endocrinologist.  I didn’t get the best “vibe” from his last doctor so we decided to make a change.  We will meet the new doc tomorrow and see what he thinks about Jack’s thyroid and were we need to go from here.  Hopefully we will hear from Eshun tomorrow but we may not until we see him Friday morning.  We will keep you in the loop as we get the news.

I am attaching some pics from the last couple of days…some are of Jack falling asleep at scans so I just wanted to give you the heads up about that.  He is always safe with Dr Maze and that is why we feel comfortable showing pics of him being put under.

I also want to take a second to say thank you to all of you….old friends, new friends, some we have never met for all of your encouraging words of the last week.  I have recieved so many wonderful texts, emails, Facebook posts, Twitter messages…it is all just so comforting.  Thank you from the bottom of my heart…

Day 1…CT Scan…

Day 2…reading before Dr Maze arrives…

and here he is…cracking jokes as usual!

Hard to believe it is already that time again but we got the call yesterday to schedule our next set of scans.  We had 6 weeks of excitement over clear scans and now we get 6 weeks of building anxiety for the next set of scans.  Jack will go in on February 14th for a CT scan which he is awake for so no anesthesia that day!  He will then get an injection for his MIBG scan the next day.  The 15th we go in and he goes under anesthesia to get his MIBG scan…the scan that makes any Neuroblastoma activity light up, so obviously we want nothing to light up!  The only good thing about going under anesthesia is that we get to see Dr Maze!  Since Jack doesn’t have to get the bone scan this time, it will be two very short days of scans.  Hopefully we will hear from Dr Eshun again that evening so we can start celebrating the next set of clear scans!  This will be Jack’s 9 month follow up scans…how time flies.

Jack has also stopped taking his Levothyroxine for his thyroid so he will get labs drawn when he is under to check those levels.  If they come back normal, he will be able to stay off the Levothyroxine and then be checked again at next set of scans to make sure it’s still normal.  That would be so wonderful if he was off all meds!!!

As always, Jack’s scans fall during a busy week…Braden turns 2 just a few days before and Zac and I will also be celebrating our 5 year anniversary.  I can’t believe so much has gone on since we were married…and even more so, I can’t believe my baby is turning 2!

So please start praying now and sending your positive thoughts this way!!  Clear scans…NED…clear scans…NED!!!!  No need for thyroid medication too please!!