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Posts Tagged ‘awareness’

Wednesday, December 14, 2011

Wednesday, December 14th, 2011

We had a wonderful today today!  Jack, Braden, my sister Stacey, Abbey, and I all went to the Phoenix Children’s Museum this morning for a few hours and the kids LOVED it!  The last time we were there was right before Jack got sick so it was fun to go back now that he is doing well.  Braden was just an infant last time and he just had a blast.  He does not sit still and wants to be involved in everything so I had to join them climbing up this huge contraption that they have in the entry of the building and I am not lying when I said that I was out of breath by the time we were done.  Yes, I need to start working out again!

After that we went to lunch and then back home for some more play time outside.  Braden didn’t nap at all so he was sound asleep at 7:00 tonight.  Jack is snuggled up next to me now watching an old Christmas movie but he will be heading off to bed soon as he has school tomorrow morning.  He just loves going to school.  He is only going 2 days a week now but come January we are going to start going 3 days a week and he is very excited about that!

Tomorrow night is the Casino Night benefiting the Jack Morton Foundation and I am so excited to go!  Unfortunately Zac is still working up north so he won’t be there with me, but I am sure it will still be a good time. I am looking forward to meeting all of those who have put this together and want to help us raise awareness for Neuroblastoma.  We are so very thankful for all of you, who we don’t even know yet, who want to help us raise money for research.  We have to find a cure for this.  We will…we have to!

If you are going tomorrow night…see you there!!!

Monday, December 12, 2011

Monday, December 12th, 2011

Everything happens for a reason…ummm, no.  I don’t believe that.  There will never be a reason why Jack had cancer.  There will never be a reason why McKenna, Ben, Ava, Mia, Kate and many more are still fighting cancer and there will never be a reason why we have lost so many to cancer.  Never. People come in to your life for a reason….now that is something that I believe.  I believe that Jack and Braden were given to Zac and I for a reason.  We have met many people over the past couple of years that we may have never had the opportunity to meet before and I think there was a reason for that and recently I have once again been reminded of that.

We have an exciting week coming up for Jack’s Foundation.  On Thursday, there will be a Casino night benefiting the Jack Morton Foundation!  The event is hosted by Chuck and Cheri Knoblauch as well as Nove’.  We will post the flyer below.  We are very excited that they chose Jack’s Foundation to be a part of this event!  Thank you so very much!!! It should be a very fun night…

I also spoke with a new friend today about a future fundraiser that will will be doing in March.  I think that sometimes you are in the right place at the right time and that is where you meet the people that you are supposed to meet.  I don’t want to give away the details but we are so very thankful that this very funny person wants to help us raise awareness for Neuroblastoma and help raise money to find a cure!!

Tonight I spoke with another special someone who is friends with Zac and what he wants to do for the Foundation is just amazing.  Him, his family, his company has been more than supportive of our family and we are so thrilled for what he wants to include Jack’s Foundation in on!

I know this all sounds very vague, but  it will all come together soon and we can share it all with you.  I just want to say thank you to these special people who have gone out of there way to help us.  Not just those who I have metioned today, but all of you who have gone about and beyond to show your support.  You have no idea what it means to us and I am not sure we can ever thank you enough.

Now…I just want to let you know that, again, I am doing updates to the website so I am sorry if there are links that are down.  It will all be up soon!  Promise!!

Monday, September 5, 2011

Monday, September 5th, 2011

Do you know what yesterday was?? 1 year since Jack’s stem cell transplant!  I have been looking back at the pictures from when we were in the hospital for transplant and it is amazing how much Jack has changed.  I can hardly believe it was a year ago.  It feels like it was only a few months ago and it has made me realize even more how fast time goes by.  We are so thankful that Jack was able to do transplant because we have always said that we thought it was one of the greatest parts of his treatment.  For Jack, it seemed as if he was given a whole new body after transplant.  He felt better, he looked better, he had more energy.  Not everyone feels this way about transplant, but for US, for JACK, it was great.  It wasn’t the best to go through, but we are thankful that he could and we are thankful for how far he has come.

When we left transplant we were told that Jack was VERY limited on what he could do for at least 100 days and we felt like that was so long and we were nervous about how we would handle that.  Now it has been a year.  Jack can pretty much go anywhere and do anything he wants to do.  He can go to games, malls, eat at restaurants, eat off of grills, have company over, go to school, go to the grocery store, get on a plane, go to the movies…so much that he can do now and it’s great!  I don’t have to wash his hands every 2 seconds anymore.  I don’t have to totally regulate who comes in this house and give them a 20 question interview before they come over.  We don’t have to change his clothes after going somewhere that might have given him germs.  It is so great!!

We were told that he probably wouldn’t grow much over the next year and his body could take a long time to recover.  Jack has grown like a weed…he even grew all new fingernails and toenails.  His feet have grown 3 sizes in 2 months.  Thankfully transplant didn’t harm his body like it could have.  Thankfully Jack had an “easy” time compared to others.  Going through treatment is hard…very hard, but Jack did it with such strength and it made it a little easier to go through because he had such a great attitude.

Here is a few pics of transplant:

Poor little guy not feeling so good at all…transplant was supposed to take 10 minutes, but it took 11 (in total Jack style!).  He had to suck on a sucker to try and ease the awful taste that the transplant has.  He can actually taste it.  It smelled like a mix of old creamed corn and raw meet…I know, not good.

Within a hour after transplant…

Later that day…feeling much better after a shower!

and then sleeping again (next day)…notice the iv pole and how large it is..

 

Tuesday, July 19, 2010

Tuesday, July 19th, 2011

Hard to believe it’s almost August!  August will be a big month for us, for starters, Jack is starting school!!  He is going to try to go 3 days a week for just 4 hours a day and we will see how well he likes it.  It is just Pre-K, but we really think it’s important for him to go and socialize more with others since he hasn’t been able to for so long.  Zac and I took Jack to his school last week to see if we all liked it and Jack was really excited once we got there.  They seem to be a good school with great administration, super clean, and a wonderful learning program.  I am pretty sure when the first week of August gets here I will be a total wreck without Jack, but I am so excited for him!  I am so happy that he has made it here and that he is doing so well.  I found him a really cool Super Mario Bento Box and have ordered that.  If you don’t know what Bento is, click here http://www.bentolunchbox.com/  It’s a very creative way to make your lunches while incorporating healthy foods.  Jack is going to have the coolest lunches out there!

Since Jack will be starting school, Braden and I will have a lot more time to spend together.  When Jack was Braden’s age, Jack and I were busy almost every day doing some sort of play date or activity.  I need to do this with Braden.  I really missed out on a lot the first 14 months of his life and that has always weighted really heavy on my heart.  I look forward to being able to spend that time with him.

As you know, August is also Jack’s scan month.  I heard from Dr Eshun the other day, we are totally playing phone tag, and he said that Jack will also be getting a bone marrow aspiration and if that is clear, he won’t have to get one at his next set of scans.  I am trying to figure out a way for them to take labs while he is under for scans so he doesn’t have to go back for labs for Eshun as well as for his 1 year since transplant labs!  Hard to believe, but September will be 1 year since Jack had his stem cell transplant.  How time has passed by so quickly.

We finally were able to get out this past weekend and both boys are feeling much better.  Jack is pretty much at 100% and Braden is getting there.  We went over to Nikki and Shawn’s to take the kids swimming and to BBQ with them and my sister and her family.  It was a good time and so happy we were able to get the kids out of this house!!

I have started and stopped this post a couple of times because I keep getting distracted, but that’s ok!  Something cute from tonight…I made dinner (salmon, rice, and broccoli) and after we were done Jack said to me, “Thank you Mommy for making that dinner, that was so yummy.”  Ok, my heart melted.  Not only because he complimented me on my cooking, but it was over very healthy food!  What a good kid!!

This week is International Neuroblastoma Awareness week.  Remember the facts that we posted a few days ago.  Remember all the innocent kids who are fighting the battle, those who have won, and those who have lost.  Remember how YOU can make a difference and spread the word about this awful disease.  Remember how YOU can make a difference by donating money to awareness, doing a fundraiser on your own, volunteering at you local hospital on the oncology floor, spreading the word…do what you can.  Please.

Jack practicing for t-ball:

Made the office into a tent room!

 

Swimming!

Happy Boy!

Wednesday, June 1, 2011

Wednesday, June 1st, 2011

I cannot believe we are already in June.  Do you realize it has been almost 9 months since Jack’s stem cell transplant??  Hard to believe time has passed by so fast…

Jack woke up this morning, and of course Braden and I were already up since Braden wakes up at the crack of dawn, and when he came to the top of the stairs before he came down he yelled, “Hey!  We are one day closer!!!  My countdown is getting sooooo little!!!” The first thing Jack does when he wakes up in the morning is rip one of the countdown rings off and counts how many days are left before the tubes come out.  We got ready and Nikki came to meet us and Jack, Braden, Nikki, and I took off for the hospital this morning for Jack’s EKG and Echo.  We were able to see Jack’s favorite Child Life buddy, Amanda, right when we got there.  Even though it was a quick visit because she was off to a meeting, it was so nice for him to see her.  He has asked about her since the day we left the hospital and it was great running in to her.

Off we went to the appointment.  I was dreading it a little bit because Jack really does not like getting this done.  An Echo and EKG are the most painless of any of the tests that he has had to go through, but he has hated it since the beginning.  Fortunately, we had a wonderful guy who was performing the tests on Jack.  He cracked jokes with Jack and talked to Braden all to distract Jack and keep him happy.  About 20 minutes later, all was done and we were on our way!  Such a short appointment, but a good one.

We came home and after lunch Braden went down for a nap and Jack and I did some work in some of the school books that we got him.  He is doing really well and I think he will catch up fast when he goes to pre-K.  We also had a delivery today of the new bracelets for Jack and all of his supporters!  We will have them for sale soon on the website, but they are so cool!  We got them in large, medium and small sizes for kids.  Jack has been wanting a green bracelet for so long like mommy and daddy so now we have them for not only him, but all of you!  Hopefully we will have it all up and running by next week.  Get a bracelet, wear it, think of Jack and all he has been through and spread the word.  In fact, get one for you and for a friend!

Anyway, all is good here and we will be heading off to bed soon.  So looking forward to Friday morning!!!