Ok…here we go!!
CT scan: negative for disease
Bone scan: negative for disease
MIBG scan (scan that detects Neuroblastoma cells): negative for disease
Bone marrow: negative for disease
So, Jack is free and clear of all cancer! Jack took on Neuroblastoma and he won! Can you believe it?! We saw the original MIBG scan today and it was covered in cancer and now it is clear as day! Funny story for our friends who know our “11″ history with Jack…we were in room 11 today!! So cool!! And today adds up to 11…and he was in bed 11 for recovery for both days after scans!!
It has been 14 months, 1 week, 4 days, and approx. 20 hours since we were told that Jack had Stage IV Neuroblastoma cancer and he has fought a big fight and won. He has stayed so positive and always told us that he would do this and he was right. We are so very excited and happy and overwhelemed right now that we don’t really even know what to do!
Where do we go from here?? Well, next week we will most likely get his tubes out!!!! Woop woop! Then we will go back in a month to see Dr Eshun and get a urine test and blood draw to see how everything looks. We will then go back in 3 months from now to get scans again to make sure this monster isn’t trying to come back. We will continue scans every 3 months for the 1st year as well as urine checks every month and then we will spread it out to every 6 months after that for 5 years.
Other news: Jack’s thyroid function is a little low so we will be adding a medication to his routine but it should be able to be fixed soon. He also has to have another hearing test to see where he is at with that. I am not sure if it’s even possible, but it seems as if his hearing is getting better than it was a month ago. He hears things that I don’t so either my hearing is going or his is getting better!
Braden’s cardiologist appointment went great yesterday too! His hole still getting smaller and he doesn’t have to go back for another year for a Echo and they think it will just close on it’s own now. Another big woo hoo!!
So I am pretty much blabbing and I have no clue what I am writing…all I know is that you all need to go out tonight or stay at home if you want and say a big Thank you God and cheers to Jack tonight!! I know we will be!!! More to come tomorrow…after my brain can actually function again! I am sure there are things I am forgetting to talk about, but like I said, my brain is not functioning at all!
On the way to scans:
Sharon and Jakers:
Jack and Dr Eshun:
All of us and Dr Eshun (don’t mind my face!)
Sharon, me, and Jack (giving his “hat’s off!)