We woke up this morning to seeing The Fitzgerald Cancer Fund in the crowd at the Today Show with huge pictures of Neuroblastoma cancer warriors and angels. Al Roker went over to the crowd of people showing support for NB and they were allowed to speak for a couple of minutes about the loss of their daughter to Neuroblastoma and how they want to raise awareness and funds for safer treatments and ultimately find a cure. It is is great when we see people spreading the word about Neuroblastoma…without awareness, you can’t find a cure. The huge pictures of the kids that they were showing are many of the children that we follow or know. It was great to see their little faces on the tv first thing this morning. Congratulations to the Fitzgerald Cancer Fund for putting yourself out there and getting the awareness you were after! As you all know, we love The Today Show and that is a great place to get your story out! It really is amazing how the knowledge of NB has been growing. Two yeas ago, no one ever talked about this disease. I had never heard of it and I am sure most of you hadn’t either. To know that more and more people are standing up and making a stand, is simply amazing to see.
I know we haven’t done an update since last week, but just so you all know…all is well. Dr Eshun called us last week and said that Jack’s echo and EKG looked great. He said, “In fact, it looks better than it did last year when he was on treatment.” I was a little surprised about that because I wasn’t aware that there was ever a time that his heart looked as if it wasn’t any less than perfect, but to know that is body is improving daily is all that I really want to know. We don’t have the results from the pulmonary function test, but as I have said before, I am really not worried about it. I think he is doing well and I am sure that is what the tests will show.
We had a great 4 day weekend with Zac being home. We had dinner with friends, played a lot, actually had a date night by ourselves (which rarely happens!), and celebrated Father’s Day before he headed out again. I will post some pictures later for you to see….including the shirt we made for Zac which happens to be pretty cute and funny!
I am off to make breakfast now for the kids and then doing a quick ride outside before it becomes unbearably hot out!!