Day 3 of antibody is done!! 1 more day to go!!! Jack did well last night but he did end up with a low fever which we had to wake him to give him Tylenol but other than that he slept like a rock. He got up early this AM because we had to give him his shot at 8:00 so we could start treatment at 9. He did good and didn’t really complain at all about it. We had my friend Melissa pay us a visit which was great. She brought him Mario Bros socks and he was so very happy about that! He put them on right away and then proceeded to put them on all of his Mario guys.
He started feeling a little cruddy around hour 5 and got a fever but after some Tylenol and Motrin he perked right up and he was back in play mode. He played tons with our nurse Katie today. We got a new roommate but due to some issues (non medical) they had, they are now gone and we have our own room again. Jack and I went to the playroom this afternoon and he had a great time in there even though he was pretty much the only child in there! After making our way back to the room, Zac came to bring dinner and visit for a bit. Katie’s shift was over so we had to say our “good-byes” because she won’t be here tomorrow when we leave. I got a little teary eyed saying bye to her…it’s hard when she has taken such good care of Jack so many times and now we won’t see her.
Jack is now fully unhooked again and sleeping. Dr Wood told us that we are going home tomorrow night as long as all goes as well as today did so keep your fingers crossed that we will be home this time tomorrow night! We are doing Jack’s shot a little earlier tomorrow so we should be done with the antibody by 6:30 PM and on our way home a hour later.
I ran into one our favorite Dr’s today and she was telling me how proud she was of Jack and just how well he has done. I, of course, started crying and she was telling me how she heard another Dr talk about coming to the end of treatment and what a good way to approach it was. She said that when you first are diagnosed you are constantly nervous about every little thing that is going on in that moment. When you are done with treatment, you are constantly worried about what lies ahead. Soon you will be nervous and worried about how much time you are away from the hospital and then it starts changing to only being nervous right before a scan. After that your thoughts start changing and when your child complains about a hurt leg your first thought is, “What did you hit it on, what were you playing, what happened?” instead of having the worry of cancer. She said it is very gradual and totally normal to be freaking out like I am. I so look forward to that time when Jack complains of something and we don’t jump at the phone to call Dr Eshun.
Here are a few pics from the last few days:
Jack with Uncle Scott
Jack and Aunt Nikki and his huge Luigi:
Jack and me:
Jack and his Mario Guys and his little puffy face:
Jack and Katie playing: