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Posts Tagged ‘Luigi’

Reality check #111

Wednesday, September 19th, 2012

It’s been awhile since I have had a post and I have been jotting down things to write about but it all went to hell when Jack gave me a reality check tonight at bed time.  We just got done reading “Warrior Baby” by Shannon Laffoon and he told me he loved the book and put it in a special spot on his bookcase.  He said, “I know just where to put this one….” and off he went.  I asked him if he liked the book and he said he really did and wanted to know more about Wylder and his dog Maddie.  We talked for a bit and then turned off the lights.  He lined up his “guys”…Norbert, Tiger, Bunny, Mario, and Luigi in the correct order and then put his head on his pillow with a smile.  I asked if we should do our prayers now and of course he said yes.  We thanked God for our family and friends.  We thanked God for our health, the food on our table, and the roof over our head.  We asked God to protect our family as he has been…not just us, but our aunts and uncles, cousins, grandparents…everyone.  We asked God to help the kids at the hospital that were hurting…to somehow take away their pain and give them hope.  After we were done with our normal prayers, I asked Jack if there was anything he wanted to say and he said…

“Am I allowed to thank God for my toys?”

I told him of course he was…

He said, “Thank you for my toys, my mom, my dad, my brother, my family, my friends…”

I asked him if he wanted to thank God for anything else like “No more…”

And Jack said, “Cancer?”

I said, “Yes, do you want to thank God for no more cancer and to ask him to keep it away forever?”

Jack said, “I already do.”

Me, “Oh…you do?  When?  Every night”

Jack, “pretty much…I always ask for that.”

Oh.  Ok.  Really?  My 5 year old asks God for no more cancer every night on his own, by himself, before bed…Wow.

I am not sure if I should be screaming with pride that my 5 year old would do such a thing or sick to my stomach that he is even thinking of such a thing.  This is what I am going to go with…

I am proud of him.  I am so very proud of him.  When I was asked what gave me the strength to get through the months of treatment that he went though, I said Jack is what got me through. He gave me strength.  He gave me power.  He should be the one getting strength from me and Zac, but he is the one who was doing it.  He knew from the beginning that hew as going to fight and he did.  He knew when he was 2 1/2 that he was going to be ok, because he told me.  He took my face in his tiny little hands and told me, “I am ok.” I believed him and that is what powered me through.  I think he has a connection with others that we don’t have.  Maybe it’s my Grandpa…maybe isn’t his Nanna Lou…I am not sure what it is, but he is wise.  I am a planner, but he plans it out before me and doesn’t even tell me.  He continues to go on with his little life like nothing has happened to him because he knows that every second counts.  Sounds a bit much for a 5 year old…maybe so, but it’s honestly the truth.  He got up every single day through treatment and kept on pushing.  Continued fighting.  Continued loving his life while he was going through hell.  He is my inspiration.  He is my strength.  He is my reason to fight and my reason to never give up.  He prays for no more cancer at night while he is falling asleep.  He is my hero.



Wednesday, January 11, 2012

Wednesday, January 11th, 2012

Well it happened…the cold/flu has hit our house.  Ughh.  Jack came down with a cough last night that has moved in to his throat and now a fever of 102.  Of course  I tend to freak out when Jack gets sick now more than I did before but I realized that wasn’t the best thing. When I was taking his temperature for the 10th time in a 40 minute time period Jack asked me, “Do I still have a fever?” I told him he did and he said, “Does that mean I have to go?  Do I have to go to the hospital?  Last time I went they had really weird shows on and Daddy and I had to wait for a really long time.  I don’t want to go.  I feel fine.”  Oh great.  Now I am freaking him out.  So I thought to myself, in my best Dr Phil voice, “How is this working for you?” How is is working being so paranoid?  Not so good!  So, I have decided to calm down.  (I can can just see my family and friend smirking now!) I will not get freaked out this time.  Jack has a cold.  A touch of the flu maybe.  He will be FINE!

So he is next to me now, having a popsicle and singing some “gummy bear” song that he learned from his cousin and watching Mario Brothers on the IPad while trying to eat pretend mushrooms like Yoshi does.  He will be fine, but it does stink just a tad that he is getting sick.  I just really hope Braden deosn’t get it too!

Hopefully I will be able to give you all more information about our event in March by Friday.  We are so excited about this and cannot wait to see you ALL there, right?!

Well, I am off to play a game with Jack before

Wednesday, December 7, 2011

Wednesday, December 7th, 2011

Jack is doing good after all of his dental work on Monday.  His mouth was more sore yesterday than the day before, but he isn’t really much of a complainer so he has been running around like normal.  The past two nights though have been a different story!  On Monday night Jack was up from 11-4:30 AM…he was saying that his legs hurt, his legs were itching, he was cold, he wanted water, he was scared of the dark…really anything and everything.  I am not sure if it was because of some different types of meds he got during this mouth work or if it was just him having a bad night.  He was exhausted yesterday and actually took a nap which was the first time in a very long time that he did that.  Last night he was up until midnight saying he was scared and that his legs were itchy and that his mouth hurt.  I gave him some Tylenol for his mouth and he did well the rest of the night.  Hopefully tonight will be better for him!

We have been having fun here with our little Elf on the Shelf, Luigi.  Jack really looks forward to coming downstairs every morning and seeing what the Elf has been up to during the night. It is fun to see him to excited.  We have been talking a lot about the REAL meaning of Christmas and I think he is really understanding what I am talking about.  He is excited for Christmas morning…he said, “Christmas will be so fun.  My whole family will be here and I love my family.  It’s so nice to be together, isn’t Mom?”  I am happy that even after all that he has been through and all the “spoiling” we have done, even though we were advised not to, that he is just as sweet as ever and so caring about everyone else.

Speaking of others, we are all really excited about bringing toys to PCH for the play room for Christmas.  I think we will do our first shopping trip with the donations we have received next weekend and then hopefully another one right before Christmas.  Since Zac’s only days off this season are on Christmas Eve and Christmas Day, we will probably go down there on one of those days.  Thank you for the toy donations and for the monetary donations so we can get more for the kids.  Please, if you can, donate so we can give back.  We will post some pictures next week after our first shopping trip!  We cannot wait to bring some smiles to the hospital on Christmas!

Here are some pics for you!

Saturday, April 30, 2011

Saturday, April 30th, 2011

Today was a good day for our family…first off, this is what I woke up to this morning:

Braden first (since he gets up so darn early!)

And then Jackers soon to follow:

How can the day be bad when they are so darn happy!  We played around the house and I attempted to do some cleaning, but it’s a little hard to do when the boys harldly let me sit much less take time to clean.  They were having a good day running after each other and playing hide-and-g0-seek-tag…Jack’s favorite game.  Braden decided to play with one of Jack’s many medical kits that comes with Dr glasses and this is what we got from it…

Grandma Jean called the other day to ask if we would come over tonight to spend some time with the family that were visiting so we all went.  Nikki spent the day moving, but after that was done for the day we all got ready and headed over to her house.  Jack insisted on wearing his Luigi costume and tie over to her house.  He is so funny.  He fell asleep on the way there which usually means he will be a bit cranky when we wake him up but he was anything but cranky.  This kid was on fire tonight!  He was making everyone laugh and was pulling one liners all night.  He is the best.  Both boys had a great time and we did too.  It means a lot to Zac to be able to spend time with his Grandma so it was nice to be able to go over to her house tonight.

Tomorrow we will be taking the boys for haircuts and running errands as well as getting Nikki and Shawn moved in to their new house.  Monday is clinic day  so wish us luck with that and hope that we can set some dates for Jack’s next scans!

Here is a picture of Jack to end this post in his wonderful outfit

Wednesday, March 30, 2011

Wednesday, March 30th, 2011

Day 3 of antibody is done!!  1 more day to go!!!  Jack did well last night but he did end up with a low fever which we had to wake him to give him Tylenol but other than that he slept like a rock.  He got up early this AM because we had to give him his shot at 8:00 so we could start treatment at 9.  He did good and didn’t really complain at all about it.  We had my friend Melissa pay us a visit which was great.  She brought him Mario Bros socks and he was so very happy about that!  He put them on right away and then proceeded to put them on all of his Mario guys.

He started feeling a little cruddy around hour 5 and got a fever but after some Tylenol and Motrin he perked right up and he was back in play mode.  He played tons with our nurse Katie today.  We got a new roommate but due to some issues (non medical) they had, they are now gone and we have our own room again.  Jack and I went to the playroom this afternoon and he had a great time in there even though he was pretty much the only child in there!  After making our way back to the room, Zac came to bring dinner and visit for a bit.  Katie’s shift was over so we had to say our “good-byes” because she won’t be here tomorrow when we leave.  I got a little teary eyed saying bye to her…it’s hard when she has taken such good care of Jack so many times and now we won’t see her.

Jack is now fully unhooked again and sleeping.  Dr Wood told us that we are going home tomorrow night as long as all goes as well as today did so keep your fingers crossed that we will be home this time tomorrow night!  We are doing Jack’s shot a little earlier tomorrow so we should be done with the antibody by 6:30 PM and on our way home a hour later.

I ran into one our favorite Dr’s today and she was telling me how proud she was of Jack and just how well he has done.  I, of course, started crying and she was telling me how she heard another Dr talk about coming to the end of treatment and what a good way to approach it was.  She said that when you first are diagnosed you are constantly nervous about every little thing that is going on in that moment.  When you are done with treatment, you are constantly worried about what lies ahead.  Soon you will be nervous and worried about how much time you are away from the hospital and then it starts changing to only being nervous right before a scan.  After that your thoughts start changing and when your child complains about a hurt leg your first thought is, “What did you hit it on, what were you playing, what happened?” instead of having the worry of cancer.  She said it is very gradual and totally normal to be freaking out like I am.  I so look forward to that time when Jack complains of something and we don’t jump at the phone to call Dr Eshun.

Here are a few pics from the last few days:

Jack with Uncle Scott

Jack and Aunt Nikki and his huge Luigi:

Jack and me:

Jack and his Mario Guys and his little puffy face:

Jack and Katie playing: