- MIBG Scan-Negative, found small, light spot on Jack’s skull when the 3D imaging was performed
- CT of chest where main tumor was-negative for cancer
- MRI of spine-negative for cancer
- PET scan of body-negative for cancer
- MRI of head-negative for cancer
- bone scan of body-negative for cancer
Yesterday Zac, Jack, and I went to see Dr. Stegman (the radiation oncologist) at Banner and talked about starting radiation for the small spot that lit on on Jack’s skull on Friday. We were worried because if he had to do 12 days of radiation, he would miss the cutoff day for immunotherapy at Pheonix Childrens and we would have to go to NY for the rest of his treatment. Dr. Stegman said he would figure out a way to try and get all of our days in on time, even if we had to do weekends, to try and let us stay here for treatment. As we left, Jack jumped up and down telling Zac and I, “Today is the BEST day EVER!! It’s the best day of my LIFE!”
Around 5:00 PM I got a phonecall from Dr. Eshun while I was at the grocery store with my mom and sister and he said that he wanted to talk to Zac and I together so I hurried home and Zac and I went upstairs and called him back. Dr. Eshun told us that he had good news for us. He said he was shocked that the bone scan came up totally negative and same with the MRI of his head. He went over all the scan over and over again with Dr. Kushner, Dr. Stegman, and the board of oncology and they have decided that the spot on Jack’s head is not “real” They believe that since the MIBG was negative until they did that 3D spec and since all of the other scans have come back negative, that it is not progressive disease and that we do NOT need to radiate his skull!! They want us to continue on with immunotherapy as planned and we will rescan in 3 months to make sure that spot is gone! We asked if he considered Jack to be NED (no evidence of disease) and he said, “There was a faint spot when we did the 3D spec, but yes, I consider him NED” WOOOOOOOOOOOO HOOOOOOOOOO!!!!
Braden went to the cardiologist 2 days ago and his whole in his heart is exactly the same. Since he is doing so great (he weighs a little over 22 lbs and is 29.5 inches long) and growing so well that he has outgrown his medication that he is on. We start giving him his medication one time a day instead of 2 and then as of next week…no more medication!! We go back in 3 months for another echo, but he is doing great!!!
So, needless to say, Jack was right. Yesterday was a great day, the best day of his life, the best day of our life, a huge light at the end of the tunnel for us. We are so happy, so thankful, so proud of our little boys. It goes without saying that this holiday season will be the best yet. We start Jack’s immunotherapy next weekend but we will gives more details on that as we get closer. Now we are just going to enjoy our time together knowing that Braden’s health is great and that Jack’s cancer is gone.