It’s’ finally over and we hope and pray that it will always be over. Jack finished his last done of accutane last night which means he is done with his treatment. It was so strange to think that this could actually be it!! He was pretty happy about it too…the little boy, as young as he is, know what is going on. He asks questions that I don’t know how to answer at times, but if he is smart enough to ask I can be smart enough to come up with a response!
We had a great weekend here. My mom came in town last minute to help us with the boys since Zac and I had a wedding to go to Saturday night. Zac was the best man in Cliff’s wedding so he was pretty much going to be busy most of the weekend with that and we decided to make a night out of it and actually stay out so my mom stayed with the boys Saturday night. Once Nana comes in town, we don’t exist. Jack only wants to play with her and that is just fine! I love that he is so happy to see her and I know spending time with the boys also means the world to her.
Jack’s birthday is going to be the celebration that lasts for months! He got a big package from my sister, Stacey, on Friday so he was pretty excited about that! He was able to build his Lego firetruck with Nana for 2 days so he was kept busy with new things to do. Before the wedding on Saturday night, our friends Brian and Jill brought in a huge bags of more things for Jack from them and Marci and Lauren. We told Jack on the way home Saturday that we had something for him from them and he got so excited that he want to the window and waited for us to get here….even though we were 45 minutes away! So thank you to my sister and her family and of course to Brian, Jill, Marci, Lauren, and Marc. You all spoil my kids rotton and they thank you for it!
This week is a HUGE week for us and to say that we are nervous is an understatement. I will be talking with my wonderful Mary from radiology to get the final order of the scans but as of right now Jack will be having the bone scan injection on Tuesday (and then you have to wait 2 hours before you get the scan), the bone scan, and then the MIBG injection. Wednesday will be the bone marrow biopsy, CT scan of neck, chest, and abdomen, MIBG scan, and a PET scan of the actual main tumor sight. We talked after Jack’s last scans and decided to add a PET scan of his main tumor sight since there was still some tissue left from his resection and although he keeps getting smaller, we want to make sure that it is nothing. Dr Eshun will go the extra mile to make sure all is well before he considers him done with treatment. We will then go back on Friday morning to meet with De Eshun to go over the results and possibly set up the date to have his broviac removed. Oh my geez…let the tears start flowing that day!
In addion to all of Jack’s appointments this week, we also have Braden’s echo/ekg on Thursday morning. We are really looking forward to seeing if his hold has closed any more then last time. He has been doing so well that I can only imagine good news.
My dad will be coming in town on Tuesday to say for a week to help us with everything. Zac won’t be able to be there for everything, so my dad or my sister will be able to go with me while Jack is in scans. My dad will stay home with Braden on Friday while Zac and I go to the result appointment so also a huge help. My dad has never missed a scan week and has been here for every result day and he don’t want to miss out on this one. I have told Jack that Grandpa is coming to say and he says, “well, what is Nana going to do without him?” He asks this every time if only one of them is coming out…he is always so concerned about the other all the time.
So let the prayers and positive thoughts start now! Please pray for Jack’s scans to go well. Please pray for Dr Maze to take care of our little boy while he is under anesthesia. Please pray for all scans to be clear. Please pray for accurate readings of his scans for for Dr Eshun to be able to come in to our room Friday morning with no doubt in his mind that Jack is cancer free. Please pray for Braden’s Echo/EKG to come back normal and for them to think the he will never need surgery on his little heart. Please, please, please, please.