To say that we are thrilled beyond belief that Jack’s scans came back all clear is an understatement. This time was one of the scariest times I have personally ever had with Jack in regards to scans. Every other scan I had the belief that he was going to be fine because he was doing so well. This time I saw something that was was out of the ordinary and it scared me. My mind went places that I never want it to go again. I went for a walk the night before the first set of scans by myself and the tears were coming down like they did when Jack as first diagnosed. I kept thinking to myself that I cannot lose him. I physically could not live without him and the fear of that happening was overwhelming.
Zac is working out of town right now and with the scans being scheduled so quickly and with my Dad being able to fly out to be with me at the hospital, we decided to at least wait until the CT scan before making a flight for him. We agreed that if there was something on the CT, he would come home immediately. It was hard not having him here because I am the emotional one (go figure) and he is the rock. When he is gone, I take over his role with the boys and it’s hard to be a rock when you feel like you are a pile of mush. We kept in constant contact with Zac so he knew what was happening at every moment and that helped. I know it’s very hard for him to be gone all the time and especially when we are going through something so hard and he is far away but I also know how hard he works for our family and I love and respect him for that very much.
When we got the first call from Sharon at the hospital that the CT was all clear, it was a huge relief. We knew that we still had the MIBG ahead of us, but to know there wasn’t a mass in his brain was huge for us. It made it a bit easier walking in to the second day of scans. Dr Maze wasn’t able to be there for Jack’s anesthesia due to him being out of town, but he called and told us that he would pick someone he knew we would love and he did a great job. We had Dr Miller and he was amazing. We had him once before and I remembered him because he was from Michigan and I was secretly hoping we would have him again. We walked in the second day and our favorite Nuc Med nurse Angela was Jack’s nurse and all the pieces started to fall together. We had Angela, Dr Miller, and of course the Amazing Mary and Shannon. It was the 11th of October and his scans was at 11:00…all the signs were there for Jack to have another set of clear scans, and he did.
Sharon called us Friday at 7:49 AM and told us to start celebrating. I asked her what she thought the shaking of the hand was for and she said it was hard to say. It could be a late effect from treatment, it could have been a nerve problem, it could have been a fluke. It hasn’t happened again and they aren’t worried about it so we aren’t worrying about it.
We have had a busy couple of days and Jack is getting ready to go back to school tomorrow after his 2 1/2 week break. He is excited to see his friends and I am excited to be able to put this behind us for another 6 months. We will chat with Dr Eshun when he gets back in town in a week or so and I am sure he will have more information to tell us but for now we are just loving the fact that Jack is doing so well and we are so very happy.
I cannot thank you all enough for all of the love and support you have given us. My phone would start going off at 5:15 AM and continue until 1:00AM every day until we knew the scans were clear. Thank you for all of the messages you sent. Thank you for all the positive thoughts and prayers and words of encouragement. Thank you for calling, writing emails, texting…thank you for it all. Thank you to my friends who let me cry and who also told me in the nicest ways to knock it off and get my mind back on track when I needed it. Thank you for making me laugh and thank you for repeating over and over again how far Jack has come and that no matter what the scans read, he would get through it. Love you all.
Here’s a few pics of the scan days….
Jack telling cancer to take a hike…
A very unhappy boy getting poked for the 3rd time…I felt so bad for him!
Uncle Scott came down to say hi but Jack was still not too happy about anything at the moment…
CT time. Of course he was watching Mario and Luigi the entire time…
Of course Aunt Nik met us at PCH too!
Before we left for day 2…
Day 2…just got the call from Sharon that the CT was clear!
We took a real quick pic and I am sure Mary is going to love that her eyes were closed, but I wanted to show some of the amazing people from Nuc Med!
Dr Miller was so good with Jack. He talked to him the entire time while he fell asleep. He held him and hugged him….he was wonderful.
Jack sleeping after scans…we had to do some more labs after but thankfully he was sleeping so he didn’t even know.
Celebrating at home! I asked Jack how he felt about having clear scans again and still having “no cancer” and he said, “It’s feels good…actually, it feels amazing.”
Seriously…we will never have a pic of us sitting still and smiling!
Day after results…soccer time. I couldn’t have been happier to have him running up to me with this smile.