Jack is about 34 hours in to his 96 hour infusion and he is doing really well. He had a very busy day today…my dad came this morning to visit and bring Jack his favorite treat, a vanilla scone from Starbucks. We had to go down this morning for a chest x-ray which was a follow up from stem cell transplant for his 100 day checkup. He did great! We came back up and I talked with his BMT nurse who told me that Jack’s vitamin D level was a little low so he has to go on a supplement for that starting Friday. She said it was nothing to be concerned about and most people have a low level of vitamin D, but since he is a transplant patient, they want to make sure they give him all he needs. She also said that all the blood tests they took 2 weeks ago came back great and everything is in normal range. Great news! She also called a little bit later and told me that the x-ray looked great and all is well. We have a meeting with the BMT team for his follow up in a couple of weeks so we will get more info then on how they think he is doing….
After all of that my Aunt Theresa, Uncle Jim and 2 of my cousins, Kevin and Marie stopped over to visit for awhile. They came in from Atlanta for Christmas and we were only able to see them for 1 day before we checked back in so it was great to see them. We haven’t been able to spend the holidays with them for a few years, but they have been so supportive all the way from Atlanta so it was great for Jack to get to know them in person. Jack had a ball with Kevin and loved having them here with us.
Jack is feeling good, a little tired, but good. He has been eating really well and putting up with being stuck in the hospital like a champ. Tomorrow will be more of the same thing…playing, resting, eating, and riding the scooter all around the floor like a wild man. He will probably start to feel pretty tired and worn down by the end of the week, so we will be getting lots of rest this weekend so he is as strong as he can be for next week when we check back in again.
Hopefully we will be able to get some rest tonight because we didn’t get much last night!
One more thing…for some odd reason, this website sent out emails of posts to people who signed up for updates from about a month ago. No clue why, but I saw that it sent out 7 different updates! Sorry about that!