It has been forever since we have posted anything but I think we needed a break for a bit. Not from posting, just from everything….make sense?? Our air went out in the house and if you live in Arizona, you know how awful that is! It was 110 out and we decided to ditch AZ for CA for a week and a half and it was well worth it! We stayed with my parents for most of the trip and it was great! We went to Sea World with the the kids and they really enjoyed it. The beach is by far their favorite place to be and I wish we could have gone there more but weather was not the best for the ocean. We had a good time just getting away from everything.
We came back Sunday night to a cool house because of a new air unit and it is much better in here! Jack had two doctors appointments today…he had to get an Echo and a EKG as well as do a pulmonary function test. He did good with both and I am sure we will hear from Dr Eshun in the next couple of days with results. I don’t anticipate them being any less than great so let’s just go with that!
Tomorrow Jack has to meet with a urologist. During his last set of scans they saw that one of his testicles has moved back up and not descended. After seeing Eshun and his pediatrician, they both wanted him to go see a urologist to see if he needs a procedure to bring it back down. Most of the time they will just wait it out to see if it falls on it’s own, but with Jack’s past we will probably opt for the procedure. The treatment that Jack has gone through may affect his chance to have kids when his is older as well as increase his odds for secondary cancer so we want to always do everything to prevent all we can. When a testicle is not in the proper place, the temperature is not accurate and can be damaging for his future for both kids and testicular cancer. Of course these are worst case scenarios, but like I said, because of Jack’s past we will do everything to prevent any more damage to his body….sooooo off to the urologist we go. Probably more info than you needed, but it is what it is!
Today marks the beginning of International Neuroblastoma Awareness week…do us a favor, take the time to share Jack’s story with someone you know who you haven’t shared it with. Send them his website…let them know how awful this beast is and how we need to do everything we can to help spread awareness and raise money for research. Let someone know how many children are affected by this disease every year and how we need to do something to change this. Here are a few facts:
Neuroblastoma is a cancer that develops from nerve cells found in several areas of the body. Neuroblastoma most commonly arises in and around the adrenal glands, which have similar origins to nerve cells and sit atop the kidneys. However, neuroblastoma can also develop in other areas of the abdomen and in the chest, neck and pelvis, where groups of nerve cells exist.
- Neuroblastoma is a common and often difficult to treat cancer, the most common cancer in infancy.
- In the United States, about 600 children are diagnosed with neuroblastoma each year.
- It is the most common tumor found in children younger than 1 year of age.
- Neuroblastoma is the most common extra cranial solid tumor cancer in children.
- Every 16 hours a child with neuroblastoma dies.
- There is no known cure for relapsed neuroblastoma.
- Nearly 70% of those children first diagnosed with neuroblastoma have disease that has already metastasized or spread to other parts of the body. When disease has spread at diagnosis and a child is over the age of 2, there is less than a 30% chance of survival.
We will share more facts as the week continues because we want to do all we can to help fight this disease. As always, thank you so much for all of your support. One day we will find the words to tell you how much we appreciate it…