We have checked in for a long stay for Jack’s stem cell transplant as of this afternoon and we are oficially at -8 day of transplant. We have been telling Jack for the past week that we were going to be staying in our own room at the hospital and once we got there it would be all decorated for him and there would be all sorts of new toys. We arranged for our friend, Kacey, to come with us and photograph Jack being admitted and then she will be coming back when we leave to photograph the completion of the stem cell stay. We got a call today to let us know that the air broke on the floor that Jack is to be staying on and that we have to stay down in the NICU tonight. Are you kidding?! Poor kid…we had this big build up for this room and now we are sitting in a small room in the NICU without all of our things. Of course this also meant that I had to cancel having Kacey come to photograph this but she may be able to stop over tomorrow for a bit to get some pics for us. Once we got here, Jack had to go and get a chest x-ray and since then 4 different Dr’s have been in to go over what we will be doing for the next few weeks. Jack is on fluids now as well as a low dose of Heparin (a blood thinner) which he will be on the entire time we are here. We have to up his mouthcare to 4 times a day as well as add a saline rinse to the normal 2 med mouthcare. He is not going to be thrilled! We have just been playing with some toys and on the computer and he is already getting anxious and wants to get out of the room. He has to take 2 different medicines tonight by mouth so we are waiting for those before we do the last mouthcare before bed. We have also been told that they will be waking Jack up every morning at 6 AM and 6 PM for a weight check. Lovely. Oh well, that is probably the easiest thing he will have to go through over the next few weeks. Jack will start his chemo tomorrow (Day -7) and he will be infused with his stem cells on day zero…next Friday.
We are very anxious to get this started and done and over with. It is hard to believe that this is Jack’s LAST chemo!! So crazy. His little body has gone through so much in the past 5 1/2 months that it blows my mind. After he is done with the stem cell transplant and recovers, he will start his radiation…we will get into all of those details after we are done with this!
We are taking this one day at a time and please keep all your prayers coming for Jack. Thank you so very much.